RESEARCH OFFICER
JOB DESCRIPTION
CONTRACT: Three-year, fixed term contract
HOURS: Full time
SALARY: Competitive, depending on experience
REPORTING TO: The Chief Executive Officer
LOCATION: **Apply on the website**, Lucan Road, Chapelizod, Dublin
D**Apply on the website** DR**Apply on the website**
MUSCULAR DYSTROPHY IRELAND (MDI) is a voluntary organisation that
provides information, advice and a wide range of support services to
people with muscular dystrophy and other neuromuscular conditions, and
their families, as well as advocating with them and on their behalves.
MDI?s main objectives are:
* Providing information and support to people with neuromuscular
conditions and their families through a range of support services
* Advocating for services and entitlements for members; educating
and informing society about neuromuscular conditions
* Supporting researchers and clinicians to carry out quality
research into neuromuscular conditions.
A key focal point of MDI?s **Apply on the website** strategy is to
create a patient registry for people in Ireland with neuromuscular
conditions. Other priorities include research to deepen understanding
of neuromuscular conditions and quality of life research.
MDI SEEKS TO RECRUIT AN ENTHUSIASTIC INDIVIDUAL WITH RESEARCH,
COMPUTATIONAL AND COMMUNICATION SKILLS, RELEVANT QUALIFICATIONS AND
EXPERIENCE FOR THE FOLLOWING POSITION:
RESEARCH OFFICER
KEY DUTIES AND RESPONSIBILITIES INCLUDE THE FOLLOWING:
Research management and support
* Lead the development and maintenance of a national neuromuscular
disease patient registry and a clinical management system. This will
include the planning, development and execution of the registry
database.
* Facilitate stakeholder and patient involvement in the registry.
* Support researchers and clinicians to carry out quality research
into neuromuscular conditions, and manage and support ongoing and
future research projects.
* Propose new research projects, in line with the research strategy
of MDI.
* Contribute to the research activities and strategy of MDI.
* Act as a point of contact between researchers, patients and
clinicians, and support the development of research networks both
nationally and internationally.
* Facilitate patient involvement in research into neuromuscular
conditions.
* Provide support to members seeking to take part in clinical trials
and the use of potential therapies.
* Manage all aspects of the research budget, identify sources of
funding and contribute to securing funds for research.
* Develop MDI policies relating to research.
* Lobby and advocate for improved treatments, clinical trials and
increased research investment.
Communications
* Work with the relevant stakeholders to develop and implement a
communication plan detailing the benefits of the registry to people
with muscular dystrophy.
* Keep abreast of research in the field of neuromuscular conditions,
current treatments and standards of care and disseminate relevant
information to stakeholders, members and staff in a timely manner.
* Represent MDI and contribute to relevant committees at national
and international conferences.
* Produce accessible content on all aspects of neuromuscular
research.
* Work with MDI Information Officer to organise information events
and prepare resources on developments in research and treatment for
members and other stakeholders.
* Communicate across all stakeholder groups, helping to inform the
wider community in relation to research on neuromuscular conditions.
* Co-ordinate MDI?s research committee and provide administrative
support.
* Participate in the development and implementation of MDI?s
research strategy.
CANDIDATE PROFILE
Qualifications and experience:
* Third level qualification in relevant field (e.g.
medical/clinical/scientific)
* Previous experience of working in a health research environment
* A minimum of two years? experience in managing and delivering
projects while meeting deadlines
* Interest in and understanding of neuromuscular conditions.
Essential skills and attributes:
* Self-motivated, capable of working independently and with a strong
work ethic
* Excellent communication skills including, written, verbal and
presentation skills and the ability to make complex topics accessible
* Computational skills (including managing databases)
* Ability to work as part of a multidisciplinary team
* Flexibility to travel as required.
This list of duties is not intended to be exhaustive, but to reflect
the main duties of the position and is subject to change. Due to the
size of the organisation all staff will, from time to time, be
required to do duties outside of their job description. Any other
duties may be allocated from time to time consistent with the
position, operational plan and strategic plan.
Interested candidates should submit a copy of their CV and cover
letter to Elaine McDonnell, CEO by Friday, **Apply on the website**th
January at 5.**Apply on the website**pm via **Apply on the website**
_MUSCULAR DYSTROPHY IRELAND IS AN EQUAL OPPORTUNITIES EMPLOYER._
We need : English (Good)
Type: Permanent
Payment:
Category: Health
